Irish Haemochromatosis Association

The Irish Haemochromatosis Association is a life-changing health, advocacy and support group for haemochromatosis (or iron overload) patients, families, the medical profession and those interested in haemochromatosis in Ireland. By raising awareness and promoting early diagnosis and treatment, we ensure that no one in Ireland goes undiagnosed or untreated.

Location:

Dublin

Established:

1999

Type of organisation:

Registered Charity

Focus

  • Health services and health promotion


Interest

  • Research
  • Scientific innovation
  • European learning networks and exchanges
  • Digitalization


Organisation

As a patient-focused, medical organisation charitable organisation, we are the voice of our patients and their families who have been diagnosed or who are suffering from the effects of haemochromatosis. Our work benefits not just our members but the wider community, who we work with to raise further awareness of haemochromatosis and promote early diagnosis and treatment.


EU Project Experience

No experience

This organisation is new to EU funding and will be supported by the Access Europe team.


EU Funding Goals

We would like to develop EU partnerships, share knowledge, skills and experiences among countries about haemochromatosis and access potential research and project funding collectively.


Strengths

The Irish Haemochromatosis Association is the only official haemochromatosis patient-focused non-profit membership organisation in Ireland. We have an active group of volunteers and very good relationships with medical experts in the field.

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Contact name:

Miriam Forde

Job tittle:

Executive Director

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